Updated: Jan. 25, 2023
Originally Published: Feb. 13, 2018
Every now and then, my child has a distinct odor that can only be described as funky—much worse than typical body odor. But let’s not jump to conclusions here; the issue isn’t linked to hygiene or a lack of effort.
The truth is, my son has a rare and often misunderstood condition known as Hirschsprung Disease. This chronic digestive disorder means his intestinal nerves don’t function as they should, leading to severe complications from birth, including a completely blocked colon. The result? Painful infections and multiple surgeries that are far from easy to discuss.
To the casual observer, he appears to be just another kid. Unless you happen to catch him at the beach, you wouldn’t notice the scars on his abdomen from various medical procedures or the rerouted plumbing that lies beneath. But occasionally, he emits a smell that is nothing short of overwhelming—worse than typical restroom odors.
His belly often produces loud, uncontrollable gurgles, and it’s not simply because he’s hungry. Sometimes, he runs to the bathroom as though he’s in a race, or he may spend an excessive amount of time in there. At 9 years old, he’s still at the stage where some mischievous behaviors are considered acceptable, but I dread the potential judgment he may face in middle school and beyond.
We do our best to manage his unique condition through various medications and interventions. However, aside from undergoing another invasive surgery to reroute his waste, dealing with occasional leaks and smells is just part of his current reality. This “normal” life hasn’t come without its challenges. My brave little boy might look like a carefree cutie, but he has endured more suffering than many experience in a lifetime—surgeries, painful dilations, and relentless gastrointestinal issues. So, a bit of odor here and there? That’s truly the least of his hurdles.
Though his condition is uncommon, many children face invisible digestive ailments like irritable bowel syndrome (IBS) and gastroesophageal reflux disease (GERD). These issues often come with the territory, leading to occasional odors and urgent bathroom trips. It’s important to understand that this isn’t about laziness or poor hygiene; it’s simply his life and the only body he’s ever known.
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In summary, the odor my son occasionally emits is not due to poor hygiene or a lack of effort; it’s a byproduct of his complex medical condition. Understanding and compassion are essential as we navigate this journey together.