As I reflect on the day you entered our world, it’s a bittersweet memory. While I would love to say it was filled with joy, I must admit that it was initially filled with fear and uncertainty. This had nothing to do with you, my dear, but rather my lack of understanding.
When the doctors informed us of your Down syndrome diagnosis, my heart sank. Yet, as I cradled you in my arms, I felt an immediate bond, an overwhelming love that every mother experiences. You were stunning, and that fierce love was both exhilarating and terrifying. What I didn’t realize at that moment was that we were about to receive a remarkable gift. You would teach us the true meaning of unconditional love, the beauty in unexpected moments, and the strength to keep moving forward.
I often cringe at the misconceptions I held on that day. I envisioned a future filled with challenges and limitations; I thought vacations and outings would be lost to us. I worried about your older sister, Emma, who had been my world, losing her place in the spotlight. I was wrong on all counts. I share this to reach out to any other mother who might be in a hospital bed today, feeling like her life is over. It’s not.
Your presence has transformed our lives for the better. We continue to enjoy the same activities as before, and you’ve introduced us to delightful new experiences. Your infectious laughter and spirited personality have made our vacations more memorable. Dining out has become a raucous affair, filled with your antics and playful mischief. You shout, you giggle, and sometimes you even toss things (occasionally at Emma).
The bond between you and Emma is a story of love that warms my heart each day. You bicker like all sisters do, yet Emma has expanded her role as your protector, a role she has embraced with pride. In truth, I suspect that you might soon be the one looking out for her. You are a spirited girl.
On this special day, I find myself filled with gratitude. I wouldn’t change a thing about you. Your determination inspires me daily as I watch you conquer the challenges of standing and walking. Though your muscle tone presents obstacles, it does not hold back your indomitable spirit. I know you will walk soon enough; for now, your sheer willpower drives you forward. Your sass is unmatched! I thought I understood sass with Emma, but you, Lily, have taken it to a whole new level.
It’s hard not to chuckle at your playful behavior—throwing things, shouting “no,” and giving playful slaps to your sister or me. Yet, you also possess a remarkable heart. When Emma feels down, you cry alongside her. You are a thrill-seeker, laughing uproariously when Dad tosses you in the air. Amusement rides are your favorite, and you clearly love adventure. You’re selective with your affection, making others earn it, which can be quite the challenge (sorry, Aunt Jess). Music fills your days, and our home is alive with laughter.
My sweet Lily, I could write endlessly about all the things I didn’t know before you came into my life. I was unaware of the incredible achievements of adults with Down syndrome—how they advocate for their rights, teach classes, star in shows, write books, run businesses, live independently, and even marry. Their contributions enrich the lives of those around them.
Before you, I had never truly grasped the essence of advocacy or the deep friendships I would cultivate within this vibrant community. You’ve introduced us to a world of remarkable individuals.
With you in our lives, our capacity to celebrate has grown. We find joy in the small victories. When you stood up for the first time, we cheered like it was the Super Bowl. Your first steps with a walker brought me to tears. Though the future remains uncertain, I have faith that having you with us makes us better people. We’ve developed greater empathy and a commitment to kindness. We’ve become more engaged in advocacy, learning how important resources like Medicaid will be throughout your life. We will always stand up for your rights and those of others like you.
You’ve made us more compassionate citizens. We love more deeply, realizing that love transcends all boundaries. We’ve learned that emotional intelligence is just as vital as intellectual ability. Asking for help has introduced us to wonderful people, resulting in stronger friendships.
Today, I want to express my heartfelt gratitude. Thank you, my beautiful, intelligent, and spirited girl, for being the gift that you are. I apologize for not recognizing your value at birth, but I will dedicate my life to sharing your story and all that I’ve learned.
I love you, Lily, for everything that makes you uniquely you.