Why We Mark the Birthday of Our Son Who Passed Away

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Every year, on September 8, our family celebrates the life of our son, Noah. The focal point of our commemoration is the release of balloons. As each year goes by, we select a theme that resonates with the age of our children, Mia and Ethan. This year, they chose a superhero theme, which adds a fun twist to our tradition. The excitement in their eyes as they watch the balloons float into the sky brings a bittersweet joy to our hearts. Each year, we are graced with a stunning sunset, but the one element forever missing is Noah, who would have turned 7 this year. He was our first child, and his life was tragically cut short after only 9 days.

It was never intended to unfold like this. On January 1, 2008, I received a positive pregnancy test that filled my husband, Alex, and me with joy. We eagerly anticipated our firstborn child and began preparing for his arrival. My instincts hinted at a boy, leading me to create the perfect nursery while obsessively selecting names. My pregnancy progressed smoothly; I felt great and had no complications. However, I was entirely unprepared for the heart-wrenching news that was to come.

The anatomy scan at around 20 weeks was meant to provide a clear look at our baby’s organs and perhaps reveal his gender. Yet, the sonogram technician’s demeanor was uneasy. “Your baby likes to hide,” she remarked, which sent a chill down my spine. Moments later, the doctor entered, her expression grave. “Is there something wrong?” I asked, anxiety coursing through me. “I’m afraid so,” she replied softly. “I think there’s an issue with your baby’s heart.” A pediatric cardiologist soon confirmed our worst fears: Noah was diagnosed with hypoplastic left heart syndrome (HLHS), a severe congenital heart defect.

Despite this devastating news, we chose to continue with the pregnancy. We visited high-risk specialists and prayed fervently for our little boy’s well-being. On the afternoon of September 8, 2008, Noah Jude arrived, and he was perfect in every way. I had never felt such love, but I was also consumed with fear. Typically, HLHS requires a series of three surgeries, with Noah scheduled for his first operation just days after birth.

Watching him struggle post-surgery was heartbreaking. I felt immense guilt, wishing I could ease his suffering. Despite the challenges, the doctors assured us he was recovering well, and we prepared to bring him home. That evening, I had the privilege of giving him a bottle, a moment I cherished deeply. However, our happiness was short-lived. A mere day after returning home, we received the call no parent ever wants to get. The doctor informed us that Noah had experienced a “blue” episode and needed immediate medical attention. I could sense the impending dread.

When we arrived at the NICU, we were handed our precious boy, who was now lifeless. I held him close, finally able to cradle him without tubes and wires, realizing he was free from pain and suffering. Family and our pediatric cardiologist joined us, but time became a blur. I remember pleading with the nurse not to take him away, and yet, I had no control over the situation.

In the weeks and months following Noah’s passing, I felt anger toward the world. Life continued for everyone else, but I was trapped in my grief. I couldn’t bear to attend gatherings, especially those involving children, and I left my job behind. A friend suggested joining a neonatal loss support group, which became a lifeline. These individuals truly understood our sorrow, and many had found ways to honor their lost children.

A year later, we gathered family and friends at Noah’s grave to celebrate his memory. We read letters to him, released doves, and shared cake. Even in our grief, there was joy in knowing we were expecting another child—a girl, who would soon learn about her big brother. As Mia turned 6, her curiosity about Noah grew. We strive to be honest, explaining that he had a sick heart and went to heaven, while reassuring her and her younger brother, Ethan, that they are healthy.

Each year, we select a spot by the water for our balloon release. This time, Mia and Ethan were eager to participate, making the event a family affair. With both tears and smiles, we proclaim, “Happy Birthday, Noah.” Although we cannot change the past or give him the healthy heart he deserved, we hold on to the nine days we spent with him—days filled with love that will remain in our hearts forever.

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In summary, celebrating the birthday of our son who passed away allows us to honor his memory while fostering a sense of connection among our family. Each balloon released symbolizes both our love and the enduring impact he has on our lives.

Keyphrase: Celebrating the memory of a lost child

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