Don’t Judge My Child with Special Needs: A Mama Bear’s Perspective

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We stood in front of the mirror, excitement buzzing in the air. An audience of over twenty was present, even though only five little girls were set to perform. One parent had even brought along what appeared to be a professional photographer. But I held no judgment; today was a significant milestone as we watched our 3-year-olds take the stage for their first ballet recital.

Recital. The word itself shimmered with promise.

I’m not a dancer. I didn’t grow up amid tutus and pirouettes, yet the energy was palpable. My precious daughter, adorned in her pastel tutu, radiated joy, embodying the spirit of this day.

So yes, I embraced the role of a proud dance mom. But I carried a unique story that set us apart from the other parents. I had been told my gorgeous ballerina might never walk or speak.

I was oblivious to the trials of the other children, and they were unaware of mine. However, I doubted many mothers had to endure lengthy interviews just to ensure their child could participate. None had consulted four specialists to decide on appropriate footwear, nor spent hours on the phone to secure permission for my daughter to skip the traditional ballet slippers. I was certain no one else had to carry their child out of class due to sheer exhaustion. But I was not there for anyone but my little ballerina.

As I listened to other mothers discuss their budding ballet stars and the challenges of juggling multiple lessons, I maintained a polite smile. I brushed off their remarks about my daughter still needing diapers, a sign they thought she was still a baby. I even heard whispers meant to discourage their kids from looking at her braces, despite my calm explanation: “It’s okay, she wears them to help her walk. Would you like to see the hearts on them?” My daughter remained blissfully unaware, and as I learned to navigate the world of parenting a child with a disability, I knew I needed to grow thicker skin.

Finally, the moment arrived. All five mothers stood facing a row of four ballerinas, each child perfectly positioned. My heart swelled as I caught a glimpse of my daughter waving at her reflection across the room. The instructor gave her a reassuring smile, guiding her to the center. As the music began, my daughter’s joy became infectious! My husband clasped my hand, and tears streamed down our cheeks. We held hands just as we had when the doctor delivered her diagnosis—a rare syndrome promising a long journey ahead. Yet here we were, witnessing her perform the extraordinary. She danced with abandon, bobbing and swaying, her laughter filling the air. I felt an overwhelming sense of pride.

Meanwhile, the other girls remained in their initial positions, moving only between first and second. My daughter, however, was dancing to her own rhythm.

“Ugh. That child is so distracting. My Olivia cannot concentrate.”

A surge of fury ignited within me. In slow motion, I turned to lock eyes with that mother. I was transformed—mama bear awakened. No one was going to speak about my child that way.

My friend squeezed my hand, sensing my protective shift. “Not now. Not during the performance.” My husband looked at me, puzzled, as I morphed from a proud mom into a fierce protector. I took a deep breath, letting go of the anger, focusing instead on my daughter’s radiant performance. She cheered for the other girls and did her best to follow instructions, taking her bows as if it were a grand opening night.

After I tucked my exhausted girl into bed, I reflected on my choices. The mother in me could empathize; she desired the best for her daughter, and perhaps my child’s exuberance was a distraction. But this was a beginner class for toddlers, and no one criticized the adorable blondie who had been busy picking her nose during the finale. I could let it slide; it wasn’t my job to educate her on kindness. Yet, the disdain in her voice was palpable, and this mama bear wouldn’t let it go. My daughter deserved compassion and empathy, and I had to advocate for her.

If my life were a movie, “The Confrontation” would be a pivotal scene. Having gathered my thoughts through deep breaths, I approached her calmly. I shared my story and how her words had impacted me. It was a painful yet liberating experience, and I left that encounter not with anger, but gratitude. It pushed me further along my journey as my daughter’s advocate.

I’ve learned I don’t need to bare my fangs to support my daughter, although it’s comforting to know they’re there. I prefer to navigate life with open arms. I encourage other moms to do the same because, at the end of the day, every mother is simply trying to protect her child.

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In summary, being a parent of a child with special needs often requires standing up not just for your child, but for kindness and understanding in the broader community. Embrace the moments of joy and be prepared to advocate fiercely when necessary.