If you’re living with an invisible illness, I understand your struggle. Here’s a challenge for you: become a louder advocate for your health.
And to those around you, you likely know one of these remarkable women. Listen closely.
Superwoman:
I recognize your incredible resilience in coping with pain, your ability to juggle multiple responsibilities, and yes, the way you still manage to look good while doing it. This facade can mislead others, potentially preventing you from receiving the care you truly need. You might already have a diagnosis, or perhaps you’re still searching for answers.
Take my friend Clara, for instance. She battled various symptoms of fibromyalgia for years without a proper diagnosis. Despite numerous medical appointments, she faced comments like:
- “It’s just stress.”
- “You’re probably just tired.”
- “You seem fine to me.”
- “It’s all in your head.”
Dear doctor: A woman who has endured childbirth understands pain. When she describes her discomfort as a “tingling” sensation akin to being zapped, it’s not simply due to sitting at a desk all day. And when she says walking feels like her feet are shoved into a tiny box, she doesn’t need a new pair of shoes or a diagnosis for a “foot issue.” Yes, unnecessary tests do happen, but it’s crucial for healthcare providers to recognize when a deeper investigation is warranted.
Now, back to you, Superwoman. This isn’t a scare tactic urging you to rush to the doctor. This is about addressing chronic symptoms. It’s the instinct you have that something isn’t quite right, even when you seem capable of managing everything. Trust that inner voice. And when you finally decide to voice your concerns, don’t hold back for the sake of being selfless. Clara waited until after her children were grown to seek the diagnosis she suspected: either a severe illness or fibromyalgia.
There’s often a blend of denial and hope that things will improve if we just keep pushing forward. Clara still ambles around town with her stylish walking aid, while doctors glance at her and say, “Well, you’re still walking!” Yes, she can walk, but it’s painful. And she fears reaching a point where she might not be able to.
The unfortunate reality is that despite her attempts to speak up, she’s often met with indifference. I witnessed her during an appointment where she candidly expressed her belief that the doctor wasn’t providing the same level of care he would afford his own wife. The doctor was taken aback, assured her he was doing his best, and sent her home without any new solutions.
So, if you’re hesitating to speak up because you feel trapped or unheard, continue to voice your concerns! Even if it comes off as assertive. Proposing treatments you’ve researched isn’t a sign of disrespect towards medical professionals. Ultimately, we share a common goal: healing. By maintaining open dialogue, we can connect with people who may provide assistance in unexpected ways. We’re all in this together.
Superwoman, now is your moment to soar. Let’s focus on you. One, two, three… Go!
Note: While this message is directed primarily toward women, it’s important to remember that each individual is unique and deserving of attention.
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Summary:
Invisible illnesses can often be misunderstood, particularly when individuals feel pressured to maintain a façade of strength. It’s crucial for those affected to advocate for their health and not shy away from expressing their needs. Speaking up is essential in the pursuit of proper care and understanding.