As the month of April unfolds, filled with Autism Awareness initiatives, I want to clarify one thing: I’m not heartbroken because my child has autism. What truly troubles me are the numerous challenges that often accompany autism—crippling anxiety, obsessive-compulsive tendencies, sensory processing difficulties, hyperactivity, and the complex layer of intellectual disabilities.
This is the reality of autism that seldom gets highlighted during Autism Awareness Month. Instead, my social media feeds are filled with uplifting memes and stories showcasing individuals with remarkable talents. While I appreciate these narratives, they often present a one-dimensional view. It becomes difficult to feel uplifted when I know that our experience is far from those inspiring tales.
I have a child nearing 13 who still holds onto the belief in Santa Claus and the Easter Bunny. He enjoys watching Baby Einstein to relax, and his room resembles a chaotic explosion of toy trains. I’m not disheartened that he doesn’t engage in typical teenage boy activities—though I often wonder what those activities even are. They seem like enigmatic creatures, but I can’t imagine they spend time hunting for rare Blue’s Clues DVDs online. (Thank goodness for eBay!)
What saddens me is the constant tension that accompanies family outings. Even enjoyable plans are clouded by stress and contingency measures based on past experiences. Some days, I dread venturing out, and it takes considerable effort to encourage both him and myself to break free from our comfort zone. My child has a built-in radar for my hesitation, and it’s evident when I’m not fully confident. I wish I could share something that should bring him joy without needing to resort to a social story.
What weighs heavily on my heart is the disparity between the “feel-good stories” shared by my friends and the mundane reality of our day-to-day struggles. Does anyone truly understand the relentless worry, stress, and frustration? This is not a fabrication; it’s our life.
And while I’m grateful for anyone reading this piece, I sometimes wish more people, especially those outside our circle, would try to understand our experiences. Inviting them over could be a challenge in itself, but I’d gladly welcome them—especially if they bring fries.
These are the aspects of autism that I wish to bring to light during this month.
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In summary, while Autism Awareness Month often celebrates the inspiring stories of individuals on the spectrum, it’s essential to acknowledge the less-discussed realities that families like mine face daily. The complexities and challenges are real, and sharing these experiences is crucial for fostering a more comprehensive understanding of autism.
Keyphrase: autism awareness month
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