This Is How Dreams Are Broken

Parenting

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When my husband and I first tied the knot, Sundays at mass became a regular affair. We often found ourselves seated behind a family with five rambunctious boys. Despite my desire for a large family, I would jab my husband and exclaim, “Five boys! What a nightmare!” Little did I know that the real nightmare would be something far more harrowing.

It was only later that I discovered the mother of those well-behaved boys had endured a battle with cancer and lost a leg. My new worry shifted to, “Cancer… that’s my true nightmare.” Fast forward five years, and my worst fears materialized when my five-year-old son was diagnosed with an inoperable brain tumor.

Back in the spring of 2009, I was knee-deep in what I perceived to be my living nightmare: four little boys under six years old. I was overwhelmed, though I rarely admitted it, considering it was my choice to welcome them into the world. Their boundless energy and constant movement were more than I had anticipated. My nightly prayers began to include pleas like, “God, please help me; I need to change so I can be a better mom.”

Change came, but not in the way I had hoped.

The morning of April 22, 2009, started like any other: toaster waffles and Playhouse Disney humming in the background. Everyone was sick with a tummy bug that week, and my nerves were frayed. My eldest was still in bed, presumably ill, while my youngest was busy wreaking havoc. I was preparing lunches for an Earth Day picnic my oldest son had suggested.

As the morning wore on, the usual chaos escalated. My 15-month-old was throwing tantrums, and I noticed one of my five-year-old twins, Alex, was still in bed. When I attempted to rouse him, I realized he was disoriented, unable to focus his gaze and exhibiting strange jerking movements. Panic set in as I recognized something was terribly wrong.

I called my husband at work, fighting back tears as I relayed my fears. He suggested I contact our pediatrician, but as I observed Alex’s vacant stare, I knew I needed to call 911.

The wait for the sirens was agonizing, but paramedics soon arrived and began their rapid-fire questioning: Did Alex have any medical conditions? Had he ingested anything? The answer to most questions was no, except for the last one. They suspected a febrile seizure, which was a small relief until I recalled he hadn’t had a fever.

My father arrived to watch the other boys as they loaded Alex onto a stretcher. I felt a sense of relief being able to ride in the ambulance with him. On the way to the hospital, I chatted with the EMT about parenting until Alex’s condition worsened, and the sirens blared.

At the hospital, the questions continued. Had he hit his head? I reluctantly mentioned a hard fall at hockey lessons three months prior, hoping that was the cause.

Then the ER doctor delivered the crushing news: “It’s a tumor.” My mind went blank, and I could hardly comprehend his words. All I could think was about the picnic we were supposed to attend that day, the plans Alex had made for us to clean up the park. How could a boy who could organize such joy be facing something so dire?

“How does a five-year-old get a brain tumor?” I asked, desperation creeping into my voice. The doctor didn’t answer; he simply turned back to Alex.

I called my husband again, delivering the devastating news. There was a brief silence before he said, “I’m coming.”

While many describe such traumatic events as a blur, I recall every agonizing moment thereafter—meeting the neurosurgeon, waiting for the biopsy results, and the sinking feeling in my stomach when we learned the cancer was inoperable and terminal.

Three weeks prior, Alex had been a vibrant, healthy child, and now here we were facing a nightmare we never saw coming. The headaches he experienced, which I attributed to allergies or migraines, could have been signs of the tumor growing since birth.

That day five years ago altered our lives irreparably. Alex lost his battle on June 10, 2010, and since then, our home feels quieter, with laughter replaced by an aching void. His brothers seem lost without him, and at times, my husband and I struggle to find joy in our days.

Three months after Alex’s passing, I discovered I was pregnant again. Fear gripped me; I questioned my strength to handle another child. Yet, this new baby has brought healing, a living reminder of Alex’s spirit, perhaps even an answer to my prayers for change.

I can’t definitively say that losing Alex has made me a better mother, but it has shifted my perspective. The chaos—messes on the floor, broken toys—bothers me less. Now, my definition of a perfect family revolves around love and laughter, cherishing each moment together. While there will always be a part of me that aches for my sweet boy, I focus on finding joy in the little things. I try to ignore that feeling of irreparable loss from the family I once envisioned.

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In summary, life can take unexpected turns that shatter our dreams, but through love and resilience, we can find meaning and joy in the chaos.

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